Publications

  • 2023

  • Alderfer, M.A., Amaro, C.M., Kripalani, S., Taggi Pinto, A., Lewis, A., Arasteh, K., Hildenbrand, A. K., Lown, E.A., & Long, K.A. (2023). Trajectories of traumatic stress symptoms among siblings of children with cancer: The first two years post-diagnosis. Journal of Pediatric Psychology. doi: 10.1093/jpepsy/ jsad033.

  • Amaro, C. M., Alderfer, M. A., Gerhardt, C. A., Wawrzynski, S. E., Goldish, M., & Long, K. A. (2023). Bringing together a transdisciplinary team to create and advance a shared vision for research and support for siblings of youth with cancer. Journal of Pediatric Hematology/Oncology Nursing, 40, 34-42. https://doi.org/10.1177/27527530221121727.

  • Davis, K.A., Alderfer, M.A., Pariseau, E., Lewis, A.M., Kazak, A.E., Muriel, A.C., & Long, K.A. (2023). Validation of the Psychosocial Assessment Tool Sibling Module Follow-Up Version. Journal of Pediatric Psychology, jsad028. doi:10.1093/jpepsy/jsad028.

  • Davis, K.A., Brosnan, P., Mazzenga, M., Buchbinder, D., Alderfer, M.A., Sharkey, C.M., & Long, K.A. (2023). Inconsistent, uncoordinated, and reactive: The current state of sibling psychosocial care. Pediatric Blood & Cancer, 70, e30103. http://dx.doi.org/10.1002/pbc.30103.

  • Wawrzynski, S. E., Alderfer, M.A., Waters, A.R., Linder, L., Reblin, M., Guo, J.W., Litchman, M.L., & Cloyes, K.G. (2023). Technology-mediated support among siblings of children with cancer. Journal of Adolescent and Young Adult Oncology, https://doi.org/10.1089/jayao.2022.0151.

  • Wawrzynski, S.E., Cloyes, K.G., Arasteh, K., Guo, J-W., Linder, L., Reblin, M. & Alderfer, M.A. (in press),  Online Experiences, Internet-fostered Connection, Resilience, and Adjustment Among Siblings of Children with Cancer. Cancer Nursing.

  • 2022

  • Long, K.A., Davis, K.A., Pariseau, E., Muriel, A.C., Kazak, A.E., & Alderfer, M.A.  (2022). Initial validation of a new psychosocial screener for siblings of youth with cancer: The Psychosocial Assessment Tool Sibling Modules. Psychooncology, 31, 1774-1781. doi: 10.1002/pon.6024. PMID: 36029137.

  • Brosnan, P., Davis, K., Mazzenga, M., Oberoi, A, Sharkey, C.M., Buchbinder, D, Alderfer, M.A., &  Long, K.A. (2022). Psychosocial care providers’ perspectives: Barriers to implementing services for siblings of children with cancer. Pediatric Blood and Cancer, 69:e29418. doi: 10.1002/pbc.29418. PubMed PMID: 34786821.

  • Morales, S., Salehabadi, S.M., Srivastava, D., Gibson, T.M., Leisenring, W.M., Alderfer, M.A., Lown, E.A., Zeltzer, L.K., Armstrong, G.T., Krull, K.R., & Buchbinder, D. (in press). Health-related and cancer risk concerns among siblings of childhood cancer survivors: A report from the Childhood Cancer Survivor Study (CCSS). Journal of Cancer Survivorship. doi: 10.1007/s11764-021-01056-0. PubMed PMID: 34075534.

  • Wawrzynski, S.E., Alderfer, M.A., Kvistad, W., Linder, L., Reblin, M., Guo, J.-W., & Cloyes, K.G. (2022). The Social Networks and Social Support of Siblings of Children with Cancer. Children, 9: 113. https://doi.org/10.3390/children9010113.

  • 2021

  • Hildenbrand, A.K., Van Schoors, M., & Alderfer, M.A. (2021). Survey research with families in the context of pediatric chronic health conditions: Key considerations and future directions. Journal of Family Nursing, 27(3):175-190. doi: 10.1177/10748407211014866.

  • Long, K., Patterson, P., Fainsilber Katz, L., Amaro, C., & Alderfer, M.A. (2021). Creating a pathway for psychosocial support in siblings of youth with a chronic illness: Findings from an international summit. Journal of Developmental and Behavioral Pediatrics, 42(4): 331-339. doi: 10.1097/ DBP.0000000000000902. PubMed PMID: 33395147.

  • Tomatsu, S., Stanley, C., Conroy, R., & Alderfer, M.A. (2021). Method matters: Comparing cancer-related adjustment of siblings to norms and well-matched peers.  Journal of Pediatric Psychology, 46(3):324-331. doi: 10.1093/jpepsy/jsaa110. PubMed PMID: 33355333.

  • Wawrzynski, S.E., Schaefer, M.R., Schvaneveldt, N., & Alderfer, M.A. (2021), Social support and siblings of children with cancer: A scoping review. Psycho‐Oncology, 30(8): 1232-1235. doi: 10.1002/pon.568.

  • 2020

  • Alderfer, M.A., Logan, B.A., DiDonato, S., Jackson, L., Hayes, M., Sigmon, S. (2020). Change across time in cancer-related traumatic stress symptoms of siblings of children with cancer: A preliminary investigation. Journal of Clinical Psychology in Medical Settings, 27, 48-53. doi: 10.1007/s10880-019-09618-2.

  • Buchbinder, D., Sidhu, S., Alderfer, M.A., Lown, A., Kolarik, R. C., & Wang, T. (2020). Pediatric resident knowledge, experience, comfort, and perceived competency in providing sibling psychosocial support. International Journal of Medical Education, 11, 73–75. https://doi.org/10.5116/ijme.5e63.6a46.

  • Christofferson, J., Stenman, K., Kazak, A. E., Pierce, J., Kelly, C., Schifano, E., Sciolla, J., Deatrick, J., & Alderfer, M. A. (2020). Family consequences of potentially traumatic pediatric medical events: Implications for trauma-informed care. Journal of Family Psychology, 34(2), 237-246. doi:10.1037/ fam0000597. PMID: 31647256.

  • DeMuth, M., Taggi Pinto, A., Miller, E., & Alderfer, M.A. (2020). Bereavement accommodations in the classroom: Experiences and opinions of school staff. Journal of School Health, 90(3), 165-171. doi: 10.1111/josh.12870, PMID: 31957037.

  • Long, K.A. & Alderfer, M.A. (2020). Where are siblings of children with special health care needs in family-centered care? The Clinical Psychologist, 73(1), 5-11.

  • Oberoi, A., *Cardona, N., Davis, K., Berk, D., Muriel, A., & Long, K. (2020). Parent decision-making about support for siblings of children with cancer: Sociodemographic influences. Clinical Practice of Pediatric Psychology, 8, 115-125.

  • Pariseau, E., Chevalier, L., Muriel, A., & Long, K.A. (2020). Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer. Journal of Family Psychology, 34(6), 698-708. PMID: 31829671.

  • Wiener, L., Canter, K., Long, K., Psihogios, A., & Thompson, A. (2020). Pediatric psychosocial standards of care in action: Research that bridges the gap from need to implementation. Psycho-Oncology, 29(12), 2033-2040. PMID: 32748495.

  • 2019

  • Oberoi, A., Towry, L., Lerro, G., Alderfer, M.A., & Long, K.A. (2019). Targeting support services for siblings of children with cancer: A community-academic partnership. Clinical Practice of Pediatric Psychology, 7, 371-382.

  • 2018

  • Long, K., Lehmann, V., Gerhardt, C., Carpenter, A., Marsland, A., & Alderfer, M. (2018). Psychosocial functioning and risk factors for siblings of children with cancer: An updated systematic review. Psychooncology, 27, 1467-1479. PMID: 29441699.

  • Long, K., Pariseau, E., Muriel, A., Kazak, A., Chu, A., & Alderfer, A. (2018). Development of a psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43, 693-701. PMID: 29617821.

  • 2017

  • Long, K.A., Pariseau, E.M., Muriel, A.C., Chu, A., Kazak, A.E., Leon, M., & Alderfer, M.A. (2017). Psychosocial screening for siblings of children with cancer: Barriers and preferences. Clinical Practice of Pediatric Psychology, 5, 364-375.

  • 2016

  • Buchbinder, D., Oeffinger, K., Franco-Villalobos, C., Yasai, Y., Alderfer, M.A., Armstrong, G.T., Casillas, J., Ford, J., Krull, K., Leisenring, W., Recklitis, C., Robison, L.L., Zeltzer, L., & Lown, E.A. (2016). Tobacco use among siblings of childhood cancer survivors: A report from the Childhood Cancer Survivor Study. Pediatric Blood and Cancer, 63, 326-333. doi:10.1002/pbc.25719. PMID: 26305712. PCMID: PMC4715577.

  • Samson, K., Rourke, M. T. & Alderfer, M.A. (2016). A qualitative analysis of the impact of childhood cancer on the lives of siblings at school, in extra-curricular activities and with friends. Clinical Practice in Pediatric Psychology, 4, 362-372. doi:10.1037/0000161.

  • 2015

  • Long, K.A., Goldish, M., Lown, E.A., Ostrowski, N., Alderfer, M.A., Marsland, A., Ring, S., Skala, S., & Ewing, L. (2015). Major lessons learned from a nationally-based community-academic partnership: Addressing sibling adjustment to childhood cancer. Families, Systems, & Health, 33, 61-67. doi:10.1037/fsh0000084. PMID: 25581558.